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Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.

Identifieur interne : 000B17 ( Main/Exploration ); précédent : 000B16; suivant : 000B18

Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.

Auteurs : R M Dröes [Pays-Bas] ; R. Chattat [Italie] ; A. Diaz [Luxembourg (pays)] ; D. Gove [Luxembourg (pays)] ; M. Graff [Pays-Bas] ; K. Murphy [Irlande (pays)] ; H. Verbeek [Pays-Bas] ; M. Vernooij-Dassen [Pays-Bas] ; L. Clare [Royaume-Uni] ; A. Johannessen [Norvège] ; M. Roes [Allemagne] ; F. Verhey [Pays-Bas] ; K. Charras [France]

Source :

RBID : pubmed:27869503

Descripteurs français

English descriptors

Abstract

BACKGROUND

Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia.

METHOD

Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD).

RESULTS

The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified.

CONCLUSION

A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.


DOI: 10.1080/13607863.2016.1254596
PubMed: 27869503


Affiliations:


Links toward previous steps (curation, corpus...)


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<term>Activities of Daily Living (MeSH)</term>
<term>Aged (MeSH)</term>
<term>Chronic Disease (psychology)</term>
<term>Chronic Disease (therapy)</term>
<term>Consensus (MeSH)</term>
<term>Dementia (psychology)</term>
<term>Dementia (therapy)</term>
<term>Europe (MeSH)</term>
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<term>Démence (psychologie)</term>
<term>Démence (thérapie)</term>
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<term>Humains (MeSH)</term>
<term>Maladie chronique (psychologie)</term>
<term>Maladie chronique (thérapie)</term>
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<term>Recherche sur la validité sociale (normes)</term>
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<term>Recherche sur la validité sociale</term>
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<term>Démence</term>
<term>Maladie chronique</term>
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<term>Chronic Disease</term>
<term>Dementia</term>
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<term>Social Validity, Research</term>
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<term>Chronic Disease</term>
<term>Dementia</term>
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<term>Démence</term>
<term>Maladie chronique</term>
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<keywords scheme="MESH" xml:lang="en">
<term>Activities of Daily Living</term>
<term>Aged</term>
<term>Consensus</term>
<term>Europe</term>
<term>Health Knowledge, Attitudes, Practice</term>
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<term>Social Support</term>
<term>Surveys and Questionnaires</term>
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<term>Connaissances, attitudes et pratiques en santé</term>
<term>Consensus</term>
<term>Enquêtes et questionnaires</term>
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<div type="abstract" xml:lang="en">
<p>
<b>BACKGROUND</b>
</p>
<p>Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>METHOD</b>
</p>
<p>Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD).</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>RESULTS</b>
</p>
<p>The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>CONCLUSION</b>
</p>
<p>A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.</p>
</div>
</front>
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<Title>Aging & mental health</Title>
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<MedlinePgn>4-17</MedlinePgn>
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<ELocationID EIdType="doi" ValidYN="Y">10.1080/13607863.2016.1254596</ELocationID>
<Abstract>
<AbstractText Label="BACKGROUND">Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia.</AbstractText>
<AbstractText Label="METHOD">Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD).</AbstractText>
<AbstractText Label="RESULTS">The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified.</AbstractText>
<AbstractText Label="CONCLUSION">A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y">
<Author ValidYN="Y">
<LastName>Dröes</LastName>
<ForeName>R M</ForeName>
<Initials>RM</Initials>
<AffiliationInfo>
<Affiliation>a Department of Psychiatry, Alzheimer Centre , EMGO Institute for Health and Care Research, VU University Medical Centre , Amsterdam , The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Chattat</LastName>
<ForeName>R</ForeName>
<Initials>R</Initials>
<AffiliationInfo>
<Affiliation>b Department of Psychology , University of Bologna , Bologna , Italy.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Diaz</LastName>
<ForeName>A</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>c Alzheimer Europe , Luxembourg , Luxembourg.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Gove</LastName>
<ForeName>D</ForeName>
<Initials>D</Initials>
<AffiliationInfo>
<Affiliation>c Alzheimer Europe , Luxembourg , Luxembourg.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Graff</LastName>
<ForeName>M</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>d Radboud University Medical Centre, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Radboud Alzheimer Centre , Nijmegen , The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Murphy</LastName>
<ForeName>K</ForeName>
<Initials>K</Initials>
<AffiliationInfo>
<Affiliation>e School of Nursing and Midwifery, Aras Loyola, National University of Irelands , Galway , Ireland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Verbeek</LastName>
<ForeName>H</ForeName>
<Initials>H</Initials>
<AffiliationInfo>
<Affiliation>f Research School CAPHRI, Department of Health Services Research , Maastricht University , Maastricht , The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Vernooij-Dassen</LastName>
<ForeName>M</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>d Radboud University Medical Centre, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Radboud Alzheimer Centre , Nijmegen , The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Clare</LastName>
<ForeName>L</ForeName>
<Initials>L</Initials>
<AffiliationInfo>
<Affiliation>g Centre for Research in Ageing and Cognitive Health (REACH) , School of Psychology, University of Exeter, and PenCLAHRC, University of Exeter Medical School , Exeter , United Kingdom.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Johannessen</LastName>
<ForeName>A</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>h Norwegian National Advisory Unit on Ageing and Health , VID Specialized University , Oslo , Norway.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Roes</LastName>
<ForeName>M</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>i German Center for Neurodegenerative Diseases, Department of Nursing Science, Faculty of Health , University of Witten/Herdecke , Witten , Germany.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Verhey</LastName>
<ForeName>F</ForeName>
<Initials>F</Initials>
<AffiliationInfo>
<Affiliation>j Department of Psychiatry and Neuropsychology , Maastricht University , Maastricht , The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Charras</LastName>
<ForeName>K</ForeName>
<Initials>K</Initials>
<AffiliationInfo>
<Affiliation>k Fondation Médéric Alzheimer , Psychosocial Interventions Department , Paris , France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<CollectiveName>INTERDEM sOcial Health Taskforce</CollectiveName>
</Author>
</AuthorList>
<Language>eng</Language>
<PublicationTypeList>
<PublicationType UI="D016428">Journal Article</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic">
<Year>2016</Year>
<Month>11</Month>
<Day>21</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo>
<Country>England</Country>
<MedlineTA>Aging Ment Health</MedlineTA>
<NlmUniqueID>9705773</NlmUniqueID>
<ISSNLinking>1360-7863</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList>
<MeshHeading>
<DescriptorName UI="D000203" MajorTopicYN="N">Activities of Daily Living</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000368" MajorTopicYN="N">Aged</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002908" MajorTopicYN="N">Chronic Disease</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
<QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D032921" MajorTopicYN="Y">Consensus</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D003704" MajorTopicYN="N">Dementia</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
<QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005060" MajorTopicYN="N">Europe</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D007722" MajorTopicYN="N">Health Knowledge, Attitudes, Practice</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D012944" MajorTopicYN="Y">Social Support</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D063586" MajorTopicYN="N">Social Validity, Research</DescriptorName>
<QualifierName UI="Q000592" MajorTopicYN="N">standards</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM">
<Keyword MajorTopicYN="Y">Social health</Keyword>
<Keyword MajorTopicYN="Y">capacity</Keyword>
<Keyword MajorTopicYN="Y">dementia</Keyword>
<Keyword MajorTopicYN="Y">effective interventions</Keyword>
<Keyword MajorTopicYN="Y">self-management</Keyword>
<Keyword MajorTopicYN="Y">social participation</Keyword>
</KeywordList>
</MedlineCitation>
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<History>
<PubMedPubDate PubStatus="pubmed">
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<Month>11</Month>
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<Hour>6</Hour>
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<PubMedPubDate PubStatus="medline">
<Year>2018</Year>
<Month>2</Month>
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<ArticleId IdType="doi">10.1080/13607863.2016.1254596</ArticleId>
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<country>
<li>Allemagne</li>
<li>France</li>
<li>Irlande (pays)</li>
<li>Italie</li>
<li>Luxembourg (pays)</li>
<li>Norvège</li>
<li>Pays-Bas</li>
<li>Royaume-Uni</li>
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